Home care in Alaska for families taking on the care of a child with complex medical needs is a family responsibility. While that responsibility most certainly falls to Mom and Dad, it also may encompass siblings who may not be as emotionally equipped to deal with their brother or sister’s daily care needs.
According to the clinical report Home Care of Children and Youth With Complex Health Care Needs and Technology Dependencies by Ellen Roy Elias, MD, Nancy A. Murphy, MD, and the Council On Children With Disabilities, “The needs of parents in their roles as long-term caregivers as well as the unique needs of siblings of children with complex, chronic conditions and disabilities should be recognized, with appropriate referrals to community agencies.” This means that families, as a unit, should partner with care providers within the community to create care plans, proactively discuss the medically fragile child’s prognosis, and take advantage of respite care opportunities whenever possible in order to provide a break for both the parents and siblings from time to time.
The report also states that, “Siblings of children with disabilities may demonstrate behavioral problems or academic failures, as they often assume caregiving responsibilities and may have unmet needs for parental attention and support.” It is important for the well siblings to be able to voice their opinions and concerns regarding their personal responsibilities within the family, and parents should make attempts to spend one-on-one time with the siblings, plan fun outings to the park or the movies or let the sibling choose his or her favorite restaurant for dinner one night a week. In some circumstances, siblings of children with complex medical issues may find counseling helpful as a way to express their feelings.
At Genacta In-Home Care of Alaska, we understand the challenges that families of children with complex medical issues face each day. Our dedicated in-home care and respite care services are available to families to make their lives a little easier, while ensuring that their children, both well and medically fragile, receive the time, attention and care that they need. Contact us today to learn more about how we can help your family.
Genacta provides Alaska’s Best In-Home Care provider for seniors and mentally or physically disabled individuals. Our list of services include Intellectual Development Disability, Care Coordination and Case Management, Dementia Care, Alzheimer Care, In-Home Health Care, Group Home Services, In-Home Supported Living, Residential Care, Respite Care and Supported Employment. We are conveniently located in Anchorage, Alaska; Wasilla Alaska and Soldotna Alaska.